An International Community
Membership & Local Support
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Please see our Constitution for further details.
All fully subscribed country members with their own constituted PWS Association pay an annual subscription fee based on the number of families in their membership. The subscription year runs from 1 January to 31 December.
How do you become a member of IPWSO? Click here
Country Associations with less than 50 members EUR 50
Country Associations with 50-99 members EUR 100
Country Associations with 100-299 members EUR 200
Country Associations with 300-499 members EUR 500
Country Associations with 500+ members EUR 1,000
Fees can be paid via iDonate, or to our bank account.
Please contact us for bank details.
If you wish to contact the local representative of any member list below; please contact us
Member countries are subscribed members with voting rights. All delegates can be contacted for help. Click the links to visit the local member website or social pages. For additional contact, help or support please let us know here
Associate Member Countries
Associate Member Countries have professional and/or parent contacts who are working with people with PWS. All delegates can be contacted for help. If you wish to speak with a local representative please contact us here
Fundación Prader Willi (FSPW)
SPINE Foundation (Argentina)
Oman, Sultanate of
Ontario Prader-Willi Syndrome Ass.
> Medical Care & Research
Get in touch and let us know how we can help you with any enquiry about Prader-Willi syndrome and how our organisation works.